Many of you know my business partner, Melinda Orlando. Today’s column is one that she wrote based on personal experience.
Joint Commission standards require hospitals to address the wishes of patients regarding end of life decisions. Whether or not the patient has signed an advance directive must be documented in the medical record and staff must honor advance directives within limits of the law.
Advance directives have been widely published in popular literature but may not be in common use with the very elderly population. Mom, however, established an advance directive many yeas ago—long before she reached 93 and broke her hip. Having observed a dear friend on life-support for a long time in a totally non-responsive state prompted her to make clear to all who would listen that this was not to be her end. Under threat of life-long harassment from the other side, she informed her three children of her wishes, signed all of the forms, and distributed a copy of each of us.
Prior to her recent surgery for hip pinning (the first hospitalization in 40 years), she discussed her wishes with her physicians. In the presence of her children and husband of 69 years, she assured the surgeon and anesthesiologist that should they need to honor her advance directive, she would remember them kindly as having done the best possible to help her. She talked about how difficult it might be to make this decision and that she trusted them and her family to do the right thing—what she wanted. No doubt this was all adequately documented in the electronic medical record that was in use near the bedside. Respecting patient preferences is dependent upon appropriate documentation being readily available to staff when it is needed.
Surgery went well. However, about an hour into recovery Mom’s blood pressure dropped and cardiac symptoms developed. One of the best things about receiving care in a large teaching hospital is the range of staff available, from medical students to the attending physician. This brings a variety of ideas and choices. The down side is the eagerness to act aggressively. Thus, we encountered a well-intended resident who insisted we proceed immediately to cardiac cath to locate and correct a possible blockage.
Although this very type of circumstance and intervention had been discussed and rejected by Mom in this resident’s presence, he wanted to “save her life.” The attending physician was called. He ordered medications to maintain comfort, and observation, according to her wishes. Mom recovered and is walking well with a walker and without evident heart problems.
The moral of the story (from the patient’s perspective) is to have an advance directive. Be sure and discuss your wishes with all immediate family members and with all caregivers. It is helpful if caregivers, particularly physicians, really understand your position and get to know your feelings and beliefs; not just that you have an advance directive. The better they understand what an advance directive means to you, the better they will be in carrying out your wishes. It is also important to have an advocate with you at the hospital if you are not fully alert or able to express your wishes. This is especially true following surgery when you may not be able to express yourself.
The moral of the story (from the facility’s perspective) is to develop a system of checks and balances to be sure that caregivers follow a patient’s advance directives. If they are not willing to do so, they should be upfront with the patient and family about their position in order to provide the opportunity for another caregiver to be chosen. Frequent education and training on advance directives and ethical issues in care is critical for improving and maintaining staff knowledge and performance in this important area.
Melinda Orlando